Prince Frederick of Luxembourg dies of a rare genetic disease of 22 – national

Prince Frederick of Luxembourg dies of a rare genetic disease of 22 – national

Prince Frederick of Luxembourg He died at the age of 22 last month from a rare genetic disorder, confirmed his parents Robert and Princess Julie over the weekend.

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The young king died on February 28 after a long battle with CitizenA genetic mitochondrial disease that inhibits the body’s ability to produce energy and can lead to organ failure among other serious complications, including worsening of the brain, nerve, liver, intestinal, muscle and eyes.

In a statement published on the POLG Foundation website, a charity founded by the late prince, his parents said Frederick had fought.valiant to the very endS “

“His insufficient lust for life was running him through the most difficult physical and mental challenges,” she continued, for which his family tells him that he fought “grace” and “humor.”

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Frederick was born with the disease, but was only diagnosed at 14 when he became a more acter stage and the symptoms began to present themselves.

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There are 300 million people with POLG worldwide, many of whom do not know they have a disorder as it can be very difficult to diagnose. There is currently no treatment or treatment.

“One can compare it with the fact that there is a defective battery that is never completely recharged, is in a constant state of exhaustion and ultimately loses power,” the statement explains.


Sir Douglas Turnbul, a professor and member of the Scientific Advisory Board of the POLG Foundation, said POLG as the smallest of all mitochondrial diseases.

“I have taken care of literally hundreds of patients with mitochondrial diseases and there is no doubt that of all mitochondrial diseases POLG deficiency is the greatest. He is so ruthlessly progressive, attacking so many different systems with the same conclusion, “he said.

The statement has also been credited by Frederick’s mother for “working without tireless” for 15 years to take care of her son and her constant efforts to inspire a sense of urgency in the global scientific community to create treatment for fatal illness.

“Beyond this tireless work, his mother is present, and organizes animation conferences worldwide to promote the development and cooperation in Polg research,” the statement said.

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In the three years after its inception, the POLG Foundation financed four major projects for a total value of over $ 3.6 million, in turn stimulates research in the field. He also partnered with medical organizations around the world to create tools to collect data for drug development and clinical trials and create numerous films, including an animated series, to train and distribute awareness of the disorder.

The family credit Fredrick for his ability to see “beauty in everything.” During a recent hospital stay, the brothers of Frederick, Alexander, recalls his late brother’s request to take a picture of the sunset through a small window in the hospital.

“Through the small, mesh window, he saw the Eiffel Tower shine with his hourly dance of lights,” the statement said.

In the same way, written on his phone, the family found notes that Frederick wrote to himself.

“Get out when the sun shines,” one said.

“We will strive to follow his instructions, especially now, when everything feels a little more cold and darker in his absence,” the statement concludes.

Frederick survived his brother Alexander, Sister Charlotte and his two parents.

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